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"What's the Best Approach to Education?"
What is really interesting to me is the background that the author brings to the book, his brother had autism (long before it was even a word) and his own son was later diagnosed with autism as well. I heard the author speak at our local autism conference at the end of October and I found him to be refreshing and absolutely fascinating. I wanted to include a few of the highlights of his presentation to share here.
Mr. Hart gave an detailed history of autism and how it came to be known by that name. Although it is believed that there have been people with autism since the beginning of time, there
was not an actual term describing the symptoms until the 1940's when Kanner and Asperger both published papers on a strange combination of talents and disability that seemed to be present in some people. At this time, parents were blamed for their child's disability. Mr. Hart's brother was in his twenties during the 1940's and his family had no knowledge of these published papers. His brother was not allowed to attend school and he talked a lot about how people with disabilities have gone through their own civil rights movement for the right to obtain an education. The 1960's brought a growing belief that autism must be caused by something organic or biological and many new approaches in treatment were developed such as TEACCH, Lovaas, and Applied Behavioral Analysis. The 1970's brought great strides in genetic research and it is his belief that we currently know about as much as we possibly can about the genetics of autism and the mystery will still remain. There were a few breakthroughs in the 1980's and 1990's but they were disappointments (fragile x, secretin, etc.)
His experiences in growing up with a sibling with autism had a great impact on him. His brother was completely dependent on their mother for everything and when she died, he had to be institutionalized. This had an enormous impact on how he has raised his own son with autism. He was very sensitive to the needs of his non-disabled child and has tried very hard to give his autistic son as much independence as possible. His son is now in his thirties, works in the public library, successfully uses the public transit system, lives in his own apartment, and has an impressive collection of Teenage Mutant Ninja Turtles. (I had to chuckle when I saw the slide of his son's
Ninja Turtle Collection in the living room of his apartment, because I can envision my son with a living room full of Happy Meal Toys!) He and his wife decided when their son became a
teenager that they were going to have to let him take some risks to learn to be independent. He figured early on that the best way to survive was to "hang loose" and "enjoy what he could" with
his son. He stopped worrying about if it was "appropriate" for his grown son to obsess over Ninja Turtles because it really was his son's choice. He reiterated several times that "the fewer
things you have to worry about and battle over, the better your life will be." He says the most important things we can teach our children with autism is community living skills; how to tell
time, spend money, use the transportation system and develop vocational abilities.
I realize that this is not really a book summary, but I think it is a great glimpse into the author's mindset and that helps to explain the tone the book is written in. The book is an encouragement for parents that something CAN be done to help their child, and also a warning to not fall prey to every new whim in treatments. Consider the quality of your child's life and the whole family before risking everything on some unproven course of action.
Another reviewer did not like Mr. Hart's conservative approach and I can understand that also. This book does have some sections that might seem dated but it is still very good and basic advice which is what parents need when faced with the news of this diagnosis.
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More serious-minded fans should take pleasure in the not-always-easy task of finding the precise flaws in Purvis' stories, which usually include just enough hard science to be credible to the casual layman. "The Next Tenants" is the only story in this collection that has any really serious message to it, and while the story is chillingly effective despite its absurdities, this book is really about laughs. From that standpoint, "Moving Spirit" is probably the best, featuring an eccentric millionaire, his illegal distillery, and a hilarious courtroom scene in which Purvis testifies as an expert witness with devastating results.
Despite the occasional slapstick moments, Clarke's humor is generally on the dry side, so this book may not please everyone. There isn't a lot of action in the traditional action/adventure sense, and female characters are usually absent or antagonistic. Still, if you're comfortable in a males-only, scientific atmosphere, there's plenty of good clean fun to be had at the White Hart.