I read this book after spending five weeks in ICU, followed by four months in a Rehab Center...recuperating from Guillain Barre Syndrome. I can relate to how she had favorite nurses...so did I, and being totally paralyzed it may be hard for others to understand just how much that extra little fluff of the pillow makes after laying for eight hours in the same position. My body was very sensative, and any movement was painful...I can imagine how much more painful it was with her. The things I found hard to understand in the book were the thoughts she had in her day to day activities....oh, I would be driving by the supermarket now, on my way to pick up my best friend Bonnie...these thoughts are just hard for me to believe. I know my thoughts were like "when will these leg spasms quit...when will I walk again...when will the aching in my legs get better...when will I get out of here....how much is this costing....when is my next therapy" these were my thoughts. The book does give a good view of just how devastating GBS can be. For me....It will be 4 years this Christmas since my GBS attack, and I am still not well. From the waist up I am about 95%, and from the waist down I am about 50% which includes leg and feet numbness, muscle spasms/cramps,joint pain, and stiffness. But I feel blessed to have back as much as I do, and I pray that God will give me the strength and courage to continue my recuperation from this catastrophic illness.

This was one of the best books I have read in a long time. I ordered this book by mail and recieved it on Friday afternoon and started reading it instantly. It is now sunday afternoon and I just finished it. I want so badly to talk to this lady to see how she is today!! To read how uncaring so many people were is so heart breaking to me. There were the few that took the time to be more attentive but everyone should have been that way!! I am a nurse at a Houston hospital and I see nurses and other staff act like that everyday and it breaks my heart because I am a very caring nurse and go above and beyond to help my patients. Every nurse needs to read this book to see how people can be feeling when you treat them that way!! I would recommend this book to everyone I work with and know!!

I am an RN and all too often, patients are faced with uncaring caregivers who perceive meeting patient's needs as "too much trouble". If there is a medical person who perceives Sue as a "whiner", I would not want that person to enter my room! The book is a compelling novel, I could not put it down! It included wonderful stories of her travels and family. I wished the book was longer, I hated for it to end. I cried throughout the last portion of the book because it was so touching. The one thing I think it lacks is getting its point across to caregivers. Some caregivers are too uncaring to fully comprehend the torture Sue went through lying there day after day, unable to move or speak, being at the mercy of others. I put it on my list as one of the best books I have ever read!