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NEWSLETTER, Fall, 1998.
In this collection of essays, journals, writings and personal recollections spanning almost half a century, Hugh Gallagher courageously reveals himself in a compelling autobiography as both protagonist and antagonist in a drama with countless scenes in three acts. Throughout the first two acts he forces himself to overcome the role of emotional anti-hero until he achieves final freedom from the talons of clinical depression at the beginning of a long, ongoing and productive third act.
Stricken with severe paralytic polio at nineteen, Gallagher never walked again. A freshman at Haverford in the spring of 1952, he was young, beautiful and free; he was in love with a beautiful girl, the novels of Thomas Mann, Italian opera, politics, and with life. He was young, strong and invincible.
Polio, My Account, was written twenty years "after the event" and never previously published. Here, he tells us what it "felt" like to have had a life sentence of disability imposed without hope of pardon or parole. The physiological aspects of his polio were just representative of the inward tragedy of the collapse of a young life. He saw himself watching his own deterioration from outside his body. He saw the horrific progression of the disease the first days: legs, trunk, breathing, arms, hands, neck, double and quadruple vision, the tracheotomy on a body too weak for anesthetics, the rush down corridors in the arms of non-medical personnel to the iron lung, the108 degree fever, last rites.
His body was the battlefield for the doctors and his presence was "accidental." No one disclosed what his ravaged body would be like if they succeeded in keeping him alive. The overwhelming question became: stop or go, yes or no, live or die. He decided to live.
After a year in hospitals, he was admitted to the Warm Springs Foundation in Georgia. He spent nine months there, learning the "functional" tricks of the trade that would enable him again to live in the outside world. He was physically independent, healthy and in a wheelchair. He still is.
He obtained his American B.A. in 1956 from Claremont McKenna College in California. It was the only college of the forty to which he had written that was fully accessible. His first application for a Rhodes Fellowship to Oxford was returned unprocessed; Gallagher was not "fit in mind and body" as required by the will of Cecil Rhodes. His was the first application Oxford had ever received from a disabled person. However, he did attend Oxford with a Marshall Fellow scholarship and studied there for three years at Trinity College, the only one of Oxford's thirty-five individual colleges that was "wheelchair accessible." He was the only person at Oxford in a wheelchair. There he endured unbelievable hardships.
The water closet was a block away, down a ramp and up a ramp, nearly always slippery from the constant rain. The bath facilities were inaccessible and he did not bathe or wash his hair for a year at a time. His legs turned blue from the cold and stayed blue until the late spring. Despite having acquired an outstanding education and lifelong friends, Gallagher now looks with awe and disbelief at the hardships he willingly endured in those three years.
In 1959, as a member of a senatorial staff on Capitol Hill he was once again the only person there in a wheelchair. There was no handicap parking, there were steps everywhere, and the bathrooms were not accessible.
In 1962 Gallagher began his life's work, the search for equal access and equal rights for disabled persons, when he joined the staff of Alaska's powerful, popular and supportive Senator Bob Bartlett (D. Alaska), a member of the Appropriations Committee. The Senator authorized him to work on disability issues and agreed to support this work. Gallagher drafted the Federal Architectural Barriers Act of 1968, the first legislation anywhere to treat equal access of disabled people as a civil right, and the precursor to the Americans with Disabilities Act of 1990.
One is thrilled by the account of the political maneuvering, and the political blackmail engineered by Gallagher and the ever-willing Bartlett in the Johnson years to achieve accessibility to the Library of Congress, the National Gallery of Art, the Kennedy Center for the Performing Arts, federally funded hospitals across America, and many more sites.
On Bartlett's death in 1968 Gallagher went to work for British Petroleum, Ltd., where he acted for five years as that Company's chief political officer in London and Washington. The discovery of vast oil reserves by BP on its Alaska holdings made it the holder of the largest crude reserves in America. Gallagher tells us he was playing with the "Big Boys."
On the 4th of July weekend, 1974, Gallagher left his office and never returned. He was in total mental and physical collapse and spent the rest of the decade recovering from his clinical depression. It had begun two years earlier at his 40th birthday party when he realized that "youth was past." He had been frozen with fear as he felt a giant black buzzard flapping its wings high above him. The experience was repeated in a few months. He continued working until he could no longer do so, filled with dread and unable to go out.
"The great black buzzard sat heavy on my shoulder. It would not go away." " ...the pain of acute paralytic polio in no degree equaled the agony and despair, the abject helplessness of depression." This period of Gallagher's life ended after a long and successful course of psychiatry and psychoanalysis.
Gallagher has long since assumed center stage in the Third Act of this heroic human drama, writing (FDR's Splendid Deception), traveling, speaking, and advocating nationally for the rights of the disabled. A must read.
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There was a conspiracy of silence among reporters & those close to FDR not to acknowledge his paralysis. This silence extended beyond his life to many books & even for a while, the memorial to him. He referred to his affliction maybe once in public late in his life.
The time he spent before & during his presidency rehabing in Warm Springs impacted on him in important ways. A strong bond developed between him, the people of Warm Springs & his fellow patients. That perhaps is the silver lining to his polio: the contact he had with ordinary folks he would never have meet, never would have had anything in common with except his disease.
I think Mr. Gallagher might agree that being stricken with polio was the defining event of FDR's life. Before he was a political lightweight. He was a handsome, charming politician who thought he might like to be president someday. After, he became wiser, more sober yet still charming, less arrogant, more compassionate & a traitor to his upper class breeding. He became stronger, much stronger as a man. The strength he gained from this ordeal contributed greatly to his becoming president & eventually leader of the free world. An important work to read to get the whole Roosevelt.
While I found the book to be inspirational, perhaps the most fascinating realization was the respect of the media in maintaining this illusion. For instance, we learn that of the thousands of photos taken of Roosevelt, only a couple exist that show him in his wheelchair. In an age where every aspect of a President's health and private life are scrutinized, this book allows us to ask the uneasy question of whether one of our greatest Presidents could ever have been elected today. You don't have to be a history buff to appreciate the value of this book; I highly recommend it.
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