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The AIDS epidemic demonstrates to be difficult for the patient, their family, and the physician. Since the disease, AIDS, was identified in 1981 by the Morbidity and Mortality Weekly Report, the struggle to overcome the disease began. Also, the struggle to overcome discrimination from the exclusive thought that only homosexuals and drug users could get infected with AIDS began. The struggle was not left only for the person infected to fight, but the doctors who did not allowed the anxiety of not having a complete knowledge about the biology and infectivity of the disease to hold them back from helping, have now changed the situation. Now there have been many changes when one regards to AIDS. We are now more knowledgeable about the disease. After reading this book , the experiences that the doctors battled against, not knowing much about the disease and threatening their life by the possibility of being infected, we can see that without the courage of these doctors we would now not have as many advances as we have. The intensity of the desire to help AIDS patients from the doctors can be seen by their involvement they still maintain today. It is known that physician Stosh Ostrow and Jerry Cade, as of 1999, served on the President' s Advisory Committee on AIDS. As the book states, although they were infected with AIDS, they still participated to not only help themselves but help others also with AIDS as they primarily wished for.
When reading this book we can now appreciate the advances made. Not only has discovered medication given many people infected with AIDS more years to live, as the book states, but we can also see the more hopeful benefits towards preventing the disease. From the beginning of the epidemic, the doctors interviewed were involved in learning about the disease. This involvement has now contributed to use the information investigated about the disease to produce a vaccine for AIDS. Although this information is not given in the book, the path towards the vaccine could have started thanks to the doctors who had the courage to treat and learn about AIDS.The vaccine has been under research for about fifteen years and if we continue to have the drive that the doctors had in the book, to help AIDS patients, the vaccine for AIDS will probably be found soon.
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The essays in this volume, all written by country experts and notable social scientists, examine the comparative response to the tainted blood crisis in eight advanced industrial democracies: Australia, Canada, Denmark, France, Germany, Italy, Japan, and the United States. The questions asked in the case studies, in the fine opening chapter by Bayer and Feldman, and in the excellent concluding chapter by Marmor, Dillon, and Scher include:
* Should national leaders have responded more quickly to the evidence that hemophiliacs and other blood transfusion recipients were becoming infected with HIV?
* What accounts for the differences and similarities among nations in the speed and character of the eventual response?
* Why did the tainted blood crisis become high political scandal in some nations -- such as France -- and not others, especially since the severity of the scandals does not seem to correlate directly with the speed and effectiveness of national leaders' responses?
* What does this historical episode tell us about the influence of political institutions on policy outcomes? And what does it say about the relative performance of different national blood products regimes? Did it matter, for example, whether donors were paid or not, or whether nations were self-sufficient with regard to blood products rather than importing them from abroad?
* What was the process through which hemophiliac groups and other affected parties came to see their greivances as legal and political claims against their governments and, at times, against the very organizations that had once represented them?
* How can such tragedies be prevented in the future?
This is, in short, a vital book for all those interested in this important chapter in the history of the AIDs tragedy, as well as for those who wish to learn more about how nations with very different cultures and political institutions respond to a common medical disaster.
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The authors Bayer and Oppenheimer interviewed 75 doctors, each with their own stories, for a total of 300 hours adding to research for the book. The doctors included researchers, doctors who treated AIDS patients, and directors of AIDS programs. Almost half of the doctors were gay, all of whom wanted to help their gay community find answers about why this epidemic was predominant in their community. The goal of Bayer and Oppenheimer was to write a book portraying the effects of AIDS on doctors, and how the doctors dealt with the epidemic on the emotional side.
The book was very emotional, with the doctors giving examples of interviews with patients which resulted in tears by both parties. Many of the doctors wrote about their patients' moving stories, while others wrote biographies. Even a few of the doctors interviewed were diagnosed with AIDS. Most of the doctors were still angry at the government and scientists for not taking a more proactive stance towards the disease when it was first introduced, and it showed through in their interviews. The hardest part was reading about other doctors who turned their back on these severely ill people because of their sexual orientation or lifestyle. The discrimination against the infected is revolting and a smudge among all of those in the scientific community who did not offer appropriate care.
I think that this book really shows a struggle between mankind and science. Many do not understand the true emotional side of the disease and the only people who really will know are those who are affected by AIDS and their doctors. Luckily for the rest of us, these two authors definitely capture the emotion. These exceptional doctors have devoted all of their commitment to a special cause, and in turn have been affected in every way of their lives by it. This book was exceptional as it showed the emotional side of doctors who put their lives forward for a seemingly hopeless cause. The book is very hard to read, and often needs to be put aside for a few days in order to recompose yourself. This is by far one of the most remarkable books I have read on the disease and deserves to sit with the rest of the award winning medical documentaries of our time.